Sadie went back to school in August and went every day wearing her fixator. Sienna and I would drive her and pick her up every day because we felt the bus would be too bumpy and uncomfortable for her. She had a few nasty pin infections that we got antibiotics for and she came home a few days early from school because of pain.
On Tuesday October 10, the nurse called me and told me Sadie fell. I went to pick her up and her fixator was broken apart. We went to Ahuja UH to see Dr. Liu and after a few hours there, a few x-rays and texts with the Paley Institute, Dr. Paley said he can do the surgery to remove her fixator on Thursday. So Sadie and I went home, booked our flights and flew down to Florida the next morning.
We spent one night in the hospital and Dr. Paley said she was non weight bearing for the next month. They also made her a hip brace and a hip abduction pillow to wear at all times. We ended up staying for an extra week for PT, which was all unexpected.
Once again, our great friends/Florida family helped us out so much with connecting us to a condo and countless other things we needed that you don't think about when you're by yourself out of state dealing with a medical situation. We got set up with our wheelchair again and walker.
Due to all of the unexpected expenses, I started a fundraiser selling Sadie Strong t-shirts and sold 177 shirts!! Thank you so much to everyone who bought one to support us!! We were able to use the money raised to help pay for our condo rent in Florida and our out of pocket PT expenses that were no longer covered by insurance.
We kept Sadie home from school during this time on a medical leave because of how fragile everything was and the school sent over a tutor (a wonderful 3rd grade teacher) to work with her during her time at home.
On my birthday, we got an x-ray taken and got the news from Dr. Paley that she can bear weight again. We then made arrangements to go back down to West Palm Beach for 3 weeks of aggressive PT to get her really going again.
We were all there during Thanksgiving time and worked with our favorite therapists again to get going. We made it to Disneyworld again a few times and even spent Thanksgiving day at Epcot! One day a baby frog got in our car while we were at PT and the nice security staff got it out for us, as it was burned to a crisp! It reminded me of Dart from Stranger Things! We definitely enjoyed swimming and getting sun in December!
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| The day that Dr. Paley told us Sadie didn't need to wear her hip brace anymore. Sienna put it on and wore it home!:) |
A highlight of our trip was participating in the Palm Beach Marathon! The Paley Foundation sets up a 5K included with the race for all of the patients and families in town. Everyone walked, ran, crutched and strolled to the finish line. It was so much fun and one of the most uplifting days of our lives! We are now looking for more 5k races to do!
Sadie is doing really well now and went back to school in January after Christmas break. She is running around and even started ice skating! I'm amazed every day after all of the hard work and times we went through that she is doing so well on her longer and functional leg.
My friend Lauren shared this with me during one of our toughest times and it really helped me get through those tough weeks in October:
A highlight of our trip was participating in the Palm Beach Marathon! The Paley Foundation sets up a 5K included with the race for all of the patients and families in town. Everyone walked, ran, crutched and strolled to the finish line. It was so much fun and one of the most uplifting days of our lives! We are now looking for more 5k races to do!
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