Back to Therapy, Back to WPB

On June 1, Sadie and I traveled down to see Dr. Paley and team for a check up 3 months post fixator removal surgery.  We had been in physical therapy at home since March and Sadie has been walking again since mid April. 

Good news is her bone is all healed.  Bad news is that her hip does not have the range of motion that it needs to have, and upon hearing that it made sense to me because she does have trouble walking still.  Being the first time I've been through this, I didn't know what to expect and just thought she was still recovering from 2 surgeries, one of them major!!  So Dr. Paley says to me, do you work?  How soon can you get back down here to do 2 weeks of aggressive physical therapy?  (His therapists are unique in their practice because the doctor's practice in general is very unique) so I quickly run my wedding schedule in my head and say after July 11.  He says that's fine and that this should do the trick and he wants to "make a physical therapist out of mom"-which means we have a lot of work to do outside of the actual therapy sessions too.

I felt deflated after that appointment because I was expecting we would hear a positive update but instead it's back to the drawing board to sort out our 4th trip to Florida since November and how to juggle work, finances and family (little kids  under 5) once again.

We realized even though an extremely tough decision, it was for the best that Sadie and I go down by ourselves and Sienna stays here, with family (Aunt Kelly and Aunt Jenny!) and daycare helping Jimmy!  It would be very difficult to bring her to all the therapy sessions, fly with the two of them by myself, etc.  so we are leaving right after we celebrate Sienna's 2nd birthday.  I'm so sad to be apart from her and Jimmy for 2 weeks but I am hopeful that we can focus on getting Sadie's hip where it needs to be so she can:

1- walk with the greatest amount of ease possible while wearing her regular orthotic prosthetic 

2- "graduate" to the next step in our process which is her 1st round of limb lengthening in the spring of 2016

Please keep us in your thoughts and prayers as we embark on this new round of therapy and still do our best to remain happy, composed, focused, and filled with love and enjoyment! ❤️. I don't know what to expect but we do have some fun plans to hang with friends who live in WPB as well as some other Paley patients.  And of course swimming every day since that is very good therapy for her hip I'm told!

Here are a few recent pics and as usual, some quotes I've found that inspire and help tremendously.